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Old 06-01-2013, 06:52 AM
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Zatochi Zatochi is offline
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Join Date: Nov 2011
Location: Louisiana
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10 yr Member
Zatochi Zatochi is offline
Junior Member
Zatochi's Avatar
 
Join Date: Nov 2011
Location: Louisiana
Posts: 57
10 yr Member
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Quote:
Originally Posted by mrsD View Post
Yes, you can take the B12 on your own. We are very fortunate that B12 is safe, and high doses don't cause problems.

Without a test I'd start at 1mg a day of methylcobalamin the active form, and take on an empty stomach. About 13mcg of this will be absorbed even if you don't have active intrinsic factor.

You could have some compressive issue in your neck. Or at the thoracic outlet in the upper chest.

Here is our TOS forum that you can read and ask questions. Some doctors don't understand this disorder.
http://neurotalk.psychcentral.com/forum24.html

Carbamazepine can be toxic over time. It affects sodium levels, and can cause blood abnormalities. Were you tested for these issues?
http://emedicine.medscape.com/article/813654-overview
you may have to join medscape to view this article, but that is free and easy. It is very complete. Vasculitis, is listed as one sign of toxicity. This can affect the nerves.

Don't discontinue this drug yourself suddenly. It needs to be tapered off carefully. Discuss this with your doctor.
Thanks for the reply mrsD

I will pickup some B12 and start taking it.

I might have a problem in my upper chest. I do have pain on and off high between my shoulder blades on my back. I did tell the doctors about it while in the hospital.

Yea I have blood tests because of the carbamazepine about every 6 months. I have been warned not to stop taking it suddenly and I have tapered down and ramped back up over time over the past 3 years as needed.

Thanks for the links and the great information.

Oh, methylcobalamin is that what I need to look for specifically and can I get it somewhere like walmart?
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