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Old 05-13-2007, 03:55 AM
robin53 robin53 is offline
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Join Date: May 2007
Location: Central Scotland, UK
Posts: 12
15 yr Member
robin53 robin53 is offline
Junior Member
 
Join Date: May 2007
Location: Central Scotland, UK
Posts: 12
15 yr Member
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Quote:
Originally Posted by frogga View Post
Hi Robin

I posted after your introduction on the RSD thread.
I just replied to that.

Quote:
I am from the SE UK (Suffolk) but am in university in Bath. RSD pain is very distinctive - the mixture of burning, alloydinia etc - do you have alloydinia?
Just did a web search on that. Google listed just four pages, two of which are on neurotalk! But no definitions. But reading between the lines, is it pain from a mere touch? In which case, no, though my sense of touch is affected, seeming just slightly strange in the affected area, slightly "electric".
Re the "burning", I do have that sort of pain, but not much until recently. I get a variety of types of pain, at various places around the knee, though it's mostly in front, over the patellar tendon region. Just recently I've had more of the burning sort, though, which feels to me very like a muscle or tendon sprain, both re pain type and the way in which it's linked to activity. It seems to be associated with a weakness, so that, the worse it is, the more easily it's made worse still. At the moment it's so bad that just a little tension in the leg muscles will set it off. But it's not excruciating, or anywhere near that. My main concern is how much worse it might be made by activities I can't (or won't, to be honest) avoid.

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Just out of interest - if you do too much do the painkillers help you recover from the extra pain of it?
I seem to get some benefit from anti-inflammatories like ibuprophen and diclofenac.

Quote:
I know there is a type of RSD where there is very little pain but other sympathetic symptoms. I think (not a dr here) that following the path of perhaps a different diagonsis OR confirmation of RSD/CRPS through another pain specialist is advisable (Though I know how hard it is to get ANY in the UK!).

Take Care, Love

Froggsyxxxxxxxxx
Thanks for that. I'm not sure about getting a second opinion when the first specialist hasn't really expressed an opinion! But I'll talk to my GP about it.

Thanks again, and you take care too.
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