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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Need Help - return of RSD
I need some help separating what might be RSD symptoms from my other autoImmune disorders. I will try to make it brief. 30 years ago I had a partial thyroidectomy for follicular adenoma- benign. 25 years ago I fell down the steps and injured my left foot had severe tissue and nerve damage and underwent surgery for what we thought was a Mortons Neuroma. I woke up in excruciating, unrelenting pain for the next 10 years which was diagnosed as RSD. I went thrrough 10 years of treatment and drugs and finally found relief with Tegretol. My limb had dystropied and had limited mobility, but day to day life way manageable with only occasional breakthrough of spasm and pain when I did too much activity and was relieved with elevation and rest. During those 10 years the RSD did have minor spread to other limbs.
Twenty years later I experienced extreme muscle weakness after hysterectomy surgery accompanied by droopy face and eye ptsosis and trembling, trouble chewing and swallowing, falling and shortness of breath. AFter 2 years of specialist I was diagnosed with the autoimmune disease Myasthenia gravis, and within 6 month another autoimmune disorder Hashimotos hypothyroidism. I am still getting these other disease under control with medication. But I have additional severe symptoms that I can not contribute to those diseases and may be part of systemic RSD. Since my RSD had been under control, I am not up on the latest research. 25 years ago when I went through this, most doctors did not even think RSD was real.
Here are the symptoms I cannot figure out - 1. severe bouts of diarrhea for days. Not attributable to medications, celiac evaluation has been negative.
2. Unrelenting tinnitis that has not gone away even for a second for 1 and a half years. 3. constant lightheadness and equilibrium problems and the constant feeling that I am going to faint but I don't 4. Profuse sweating with any temp over 70 degrees or the least activity like folding laundry. And the sweating is not from the usual places like under arms. I am drenched. It is from my head, chest and back. I look like I have just come out of the shower. 5. intolerance to warm temperature. Any temp over 70, makes me extremely weak and I get the profuse sweating. But my skin is cool to the touch, it is like I am burning up on the inside only.
All the symptoms happened after the surgery 2 years ago. I had already been through menapause 10 years before that. But all the symptoms and the MG and Hypothyroid as well as return of RSD sensations and spasm as well as eczema of the skin and toenails on the RSD foot. I am trying to figure out f this is systemic RSD or another autoimmune disease.
Sorry for the long post but 1 specialist says ask the other specialist and I am getting nowhere.
thanks
kathie
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