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Old 06-01-2013, 08:39 PM
alaska49 alaska49 is offline
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
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Iam so sorry for what you and your partner are going through. I know what you mean when you get to the point of not trusting medical professionals, I have seen 211 doctors in 7 states with half good and half horrible, I think its just somthing we all end up going through.

I have been doing the ketamine infusions. I did the out patient it started with 4hr everyday for 10 days then 2xs a week for a month then since my case was so bad I went 1x a mont for a year and a half most patients only go a month. Then its 1x every other week for a month, then 1x a month until they reach the point where your body could handle 3-4 months before another booster. We are all different some go 1x a month while some can go 5 months wihout it. As for doses my doctor starts at 60mg then through the 10 days slowly raises it to how much you tolorate he stops at 350mg, for me I could only take 150 as any high made me sicker. My doctor has also given me ketamine nassal spray and lossanges which help keeping me from needing it sooner.

I would like to try the IVIG treatment just to see if it helps any differently. the ktamine has helped me, I now an walk and use real shoes, i am still having issues but am no longer just living in a bed. I hope you can find help, my prayers are with you both.

Samantha
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