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Old 06-01-2013, 11:23 PM
Halfnelson Halfnelson is offline
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Join Date: Sep 2012
Posts: 49
10 yr Member
Halfnelson Halfnelson is offline
Junior Member
 
Join Date: Sep 2012
Posts: 49
10 yr Member
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Quote:
Originally Posted by SpaceCadet View Post
Hi,

I'm going in for LENS treatment this month. One of my brain injury friends who has literally identical symptoms to me has reported that its greatly reduced her TBI/PCS symptoms. She has her life back now and claims to be 30% better than she was before starting the treatment. I've got everything to gain and nothing to lose, so, I'm going for it. After seeing dozens of doctors, taking every medicine under the sun, neuropsych tests, MRI, CT, EEG, etc. and being told my symptoms were psychological (bull @@@@)...I think I've finally found my answer. If not, at least I could say I've tried everything.

OP, are you anywhere near California? I've been referred to a research program in San Diego that is helping people with prolonged PCS symptoms. They are affiliated with someone who run a LENS machine and wants to help people by offering the treatment for $0.00 (free). I will gladly give you their contact information.

I can't guarantee it will make you feel any better. But if youre like me, desperate with nothing to lose, I think it's at least worth a try. Even if it costs you a trip to San Diego. I'm too young to live my life like this. And you know what, nobody deserves to be subjected to this type of torture.

Shoot me a PM if you want to talk in private.

Nick
Thanks Nick - I actually live in South Australia so a trip to San Diego may not be very cost-effective! I've been to the States before though and really enjoyed San Francisco.

Thanks Mark - It does appear that the usefulness of LENS to treat concussion disorders is still poorly understood and could perhaps induce negative side effects. Despite this, I have absolutely nothing to lose and may still give it a shot.

I will try and keep everyone updated on the LENS therapy as well as other therapies following on from my nystagmus and vestibular-ocular mismatch diagnoses.

Starting to feel like a bit of a 'patient' and trying not to get caught in this negative mindset.
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"Thanks for this!" says:
concussedlawyer (06-06-2013)