Ginnie, I couldn't agree more with what you say above. I would also stress that a lot of my symptoms with Behcet's are neuro type symptoms and I also suffer from arthralgia - joint pain which is caused by inflammation so no impact on the joints. I trailed around seeing rheumys and neurologists who were of no help to me whatsoever as there was nothing wrong with me in their eyes (they could not diagnose my illness and didn't even really understand it).

I got my diagnosis in the end, from an immunologist. It's important for anyone with these sorts of symptoms to look at other types of docs if they want to get help. You can get very ground down knocking on doors hoping the next neuro will have an answer for you and get totally dismissed because your bloodwork is clear. With Behcet's and some other auto-immune issues, no bloodwork will give you a diagnosis. I only ever have raised inflammatory markers and sometimes not even that.