Quote:
Originally Posted by chloecasey
My experience (post surgery 28 months) is like others,.... you get a diagnosis, have surgery (mine x 3), go back for followups (never see the surgeon, only med. assistant & nurse practioner) and told it is "baby steps" when you explain your concerns and the complications.... then go for a second opinion with another TOS specialist, basically told that what I am experiencing is something I have to live with?? Sounds to me like not wanting to get involved!!!
Also, fairly certain that TOS specialists studies that are done on Patient cases don't always include "failure and poor long term outcomes"......those cases they just want to forget or not document??.....makes me so mad also!!
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Bunch of chickens I say!....never see the surgeon AGAIN? That is just straight up wrong! Only that surgeon knows what was inside of you and he needs to tell you what happened....honestly. I guess I got really lucky and just didn't know!
Dr. Urschel told me that I would always have pain because my skeleton was deformed, and all he could do was to get the deformity off my nerves. Which he did do that......So I was fully aware that I was not ever going to be free from pain because I was told....not because I read about it........When these kind of things happen it is traumatic and the doctor needs to help the patient understand what is going on and what to expect....
Maybe medicine these days is just too sales pitchy.....because it can be, as the surgeons do not have to face the patient ever again....not good.
I do think that if a patient requests a conference post -op a good surgeon would do that. Guess the good -ol days are over where marcus welby walks out and tells you everything that happened in surgery.......wow that ages me. lol
oh, almost forgot, I agree with you about information concerning real outcomes of this surgery, that information is hard to find....gotta dig hard!