Thanks for your great post Bob.

There is some Parkinson data available to the citizen scientist. Probably the best source is the MJFF supported PPMI database. There are also indirect sources, e.g. mortality data from the CDC and prescription data from the NHS.

If we need any extra data, we can collect it ourselves. See, for instance, my web site:
www.parkinsonsmeasurement.org
All the data collected there is open to everyone. All the code is open source.

We need to run our own clinical trials. (I'm thinking of curcumin, not DBS.) For that we need an ethics committee.

Any volunteers?

John