Junior Member
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Join Date: Aug 2012
Location: Las Vegas, Nevada
Posts: 70
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Junior Member
Join Date: Aug 2012
Location: Las Vegas, Nevada
Posts: 70
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I went to Mayo for treatment and found it suited what I was looking for. I was originally diagnosed locally on August 29 last year and had a CT scan that indicated an enlarged thymus. I refused to have surgery locally and opted to head to Mayo for a consult since my insurance covered me there.
I found their approach to be unique, but appreciated. I scheduled my initial appointment with a neurologist that specialized in MG and was told to plan on staying a week or so in order to accommodate any testing they wanted to have done. When I saw the doctor, the appointment lasted close to two hours where we discussed my history, symptoms, severity, etc. Then she did a workup of various strength tests.
I was then immediately scheduled for bloodwork after the appointment, an overnight oximetry for the following night and an EMG two days later. I also had a referral to a cardiothoracic surgeon and a follow-up with the neurologist immediately after the surgical consult on the second day. And then before I'd even left, I had surgery tentatively scheduled.
I will say it can be a bit overwhelming and tiring, depending on exactly how you're doing, but for where I'm at and what I want, it was definitely what I was looking for.
If you have any specific questions, I'd be happy to answer them.
Good luck in your search!
Adam
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