Hi all! Just want to say that I personally understand trigeminal neuropathy and neuralgia. I also understand headaches and Occipital Neuralgia.
After suffering with both on one side for a few decades and TN starting up on the other side recently, I had a left side MVD about 6 months ago. My neuralgia and neuropathy continues to improve. The pain changed from a constant boring burning ache and sharp electric shooting jolts to a low roar. My TN pain levels stay in the 1-7 range with an occasional 0 in the mix. So worth the surgery.
I hope to maybe get a neurostim implant for the remaining bilateral TN pain and my ON. My ON is keeping me down most days. But I can now separate the pain origins with the TN pain nocked back a little. Before it was too confusing and exceptionally debilitating.
Glad you are all here for me to learn from, Therese