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Originally Posted by txarmywife
Hi Im new to the forum and was wondering if its possible for RSD to effect organs or does it just effect the extremities?? Has anyone every had flank/abdominal pain from RSD??
I ask because I was diagnosed with RSD as a young child. I tore my right Achilles' tendon and had several casts/boots/braces and even after the injury was healed I had excruciating pain. When the dr lightly touched my foot I would scream in pain and was then given the dx of RSD. After years of physical therapy and countless braces the pain subsided and I regained movement to my ankle.
It was around this same time I began having unexplained flank pain accompanied by occasional microscopic blood in my urine...and later digestive problems which I was given the diagnosis of Inflammatory Bowel Disease Indeterminate Type. (I had inflammation throughout my colon but a dx of Crohns vs Ulcerative Colitis could not be determined) This was around age 12. I was also dx with juvenile athritis thought to be a symptom of the IBD.
Life continued and I would get on prednisone as needed.
Then in 2010 I was seen in the ER for flank pain and was dx with a severe kidney infection and non obstructing stones. From here I began having the unexplained flank pain...most severe on my right side with occasional pain on the left. I passed a few stones, developed a stricture in my left ureter which a portion of it was later removed. But I have the same severe flank pain even in the absence of a passing stone or infection.
It's as though when my body has acute pain, the pain receptors stay "on" so to speak and Im stuck with the agnoizing cycle of unexplained chronic pain. Without a known cause at this time for the flank pain I couldn't help but be reminded of the incident that happened with my foot all those years ago (I'm now 25) and wondering if its possible this could all be related?? That how ever my brain precieves pain, gets stuck on so to speak. I've started seeing a pain specialist and he's done 3 celiac plexus nerve blocks which have helped with my flank pain. But I'm still dying for an explanation and am curious to see what your opinions may be based on my situation or if anyone has gone through something similar
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RSD is named for the sympathetic nervouse system which is the part of the nerve systems that controls involuntary muscles, glands etc. such as heart, thyroid, liver, kindly, breathing etc. making this possible for RSD to not just affect your organs but also spread to them. I have recently become friends with a couple of RSD sufferers that havi it in their organs now as well.
alot of what oyu have explained can be from the drugs you use.. I do have abdomen pain from RSD but it started in my past surgical scars, appendix, hernia, and bladder. also I have RSD in my groin,. Ask your DR,s many questions, and dont assume one way or another, and try not to stress.
Its hard ..I know, I wish you luck