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Old 06-05-2013, 12:19 PM
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Quote:
Originally Posted by chrisandrob4ever View Post
My RSD started in my left foot 4 1/2 years ago with a sprained ankle. It has slowly spread, I have it in my hips and even in my bladder. Over the last few days it feels as if it has spread to even more places. I am having spasms all over. And I am getting no relief. I am starting to feel crazy. The stabbing pain and fire and little pins and torture that I have felt in all the other places I am now feeling everywhere. Is RSD capable of spreading without you doing any damage to another part of your body? I don't want this to spread. I am only 38 I can't take much more of this. Please help me someone. I can't even get my doctors to listen to me I really need a lot of help.
It is possible, but you may also be having a bad flare that will subside again... I had a patch like this a few months ago and thought I was going mad with the damn thing, shooting electric shock type pains throughout my body, pain and soreness all over the place, GI pain with vomiting and diarrhoea (twice, a couple of weeks apart, for no reason, and the rest of my family didn't 'catch' it), also some spasms, twitching etc. it was horrible. I changed meds and watched my diet and stress levels, and it gradually eased off.

I think sometimes the CRPS just goes a bit crazy throughout your central nervous system, and affects everything for a while. Hopefully it doesn't mean it is permanent spread.

I do hope your situation improves really quickly, and you feel a little better soon. Must be a miserable time Try to stay calm where possible, eat healthily, and try to keep gently moving if you can. Distractions and small treats might help you feel a little more human for a while...and you definitely deserve something nice

Take care of yourself,

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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