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Old 06-05-2013, 10:04 PM
huntress huntress is offline
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Join Date: Jul 2012
Posts: 104
10 yr Member
huntress huntress is offline
Member
 
Join Date: Jul 2012
Posts: 104
10 yr Member
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Quote:
Originally Posted by 4-eyes View Post
Wow, sounds like they are really cutting back on your meds, whether you need it or not! Sigh. Sorry to say it, but my thought is "scond opinion time.". My gut feeling is that your current doc is perhaps not the best versed doc in MG treatments.

Good luck!
Lol funny you should say that. The neuro I have now is the top where I come from he even is a top member in the myasthenia gravis org. My old neuro refered me to him for a second opinion. But then the whole crisis thing, why I'm on prednisone and they cut my mestinon. Too much saliva and I couldn't swallow it at that time. Last time I saw my neuro he told me I could take my pyridostigmine if I felt I needed it more. He also said he is going to get me better that even though i am a hard case one of the worst bulbar generalzed he hes seen. The one thing I want back is my voice that is a daily struggle even with the plex my voice struggled. One thing about MG everyone of us id a little snowflake unique to our symptoms and the meds we need to live.
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"Thanks for this!" says:
cait24 (06-06-2013), pingpongman (06-06-2013)