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Old 06-06-2013, 11:53 PM
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
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10 yr Member
cait24 cait24 is offline
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cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
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"They are going to try and get me into the Mayo clinic, but there is only a slim chance. I give up... "

I think if you contacted Mayo and told them of your current treatment, you should have a good chance of getting in. I think they would be so appauled they would get you for sympathetic reasons. Let the doctors do the leg-work with getting all your testing over and writting all the letters but follow up with Mayo's medical concierge with your own letter of your medical history and your families as well as your current condition. That is what John Hopkins said for me to do. Persistance pays off. Keep following up by phone every month explaining your situation and medical condition. I did this with Jefferson and got my appointment bumped up from 8 months to 2 months.

kathie
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