Greetings

I'm writing for my son William who had a stroke on the right side of his head and body about 3 weeks ago. He's 90% deaf, a child of a mother who had Rubella syndrome, and he had surgery for patent ductus shortly after birth. Last week following the stroke it was suggested that he may have Moyamoya syndrome, so we've arranged for another opinion with Dr. Mericle at HWNeurological Institute in Nashville, who appears to be a leading researcher in the field. On July 13th we'll meet with him for another examination.

Willy would like to know if there are any other deaf people out there who have been diagnosed with Moyamoya? We had been concentrating on a heart skip problem and were shocked when he had a stroke.

Please let us know if you are aware of others with this problem.

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