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Old 06-07-2013, 11:37 AM
Unsure81 Unsure81 is offline
Junior Member
 
Join Date: Apr 2013
Posts: 81
10 yr Member
Unsure81 Unsure81 is offline
Junior Member
 
Join Date: Apr 2013
Posts: 81
10 yr Member
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MG is cruel enough without the fight for diagnosis...let alone having a diagnosis and then having it removed!! It's about time the Neuro's all got together and decided which tests/results/symptoms determine a diagnosis of MG, collectively agree on it and than started actually trying to help people instead of the constant focus on disproving it! Why are we left jumping from Neuro to Neuro when surely they should all be educated to the same standard - its a shame the "Box Ticking" is more important than looking at the individual! We all know none of the tests are 100% so while they wait to develop one that is, they should acknowledge that there are people who will have MG who won't show up on every test (or, in some cases, any tests!) grow some balls and at least try to help to give those people their life back!!

I really hope you find a Neuro with some common sense and compassion and they help you to get back to feeling somewhere near yourself - Good Luck.
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