Hi everyone.... I feel a bit cheeky posting this as you all are having your own struggles but this time tomorrow I will be travelling 90 miles to see a neuromuscular specislist after 9 years of basically being told there is nothing wrong with me. As some of you know - I have facial/eyelid droop intermittent walking/muscle/breathing difficulties and now some swallowing problems!

I have to say that I am just dreading it and not really expecting anything from him because my last (and only!) neuro's determination that there is no evidence of disease. I feel dismissed and kinda on trial to prove myself

If anyone has any advice that may help I would love to hear it but I would also be so grateful for any luck or prayers you might send my way over the next 24hrs! Like I said, I feel cheeky asking knowing what you are all going through but I feel like my options are running out fast for the answers (and help) I need.

Thanks everyone - you posts and discussions are a big comfort and support.x