I would suggest writing down your symptoms and history from the patient perspective. On the computer if possible. It helps if they are in chronological order. Re-read them and proof many times to remove any personalizaion of symptoms or treatments like Fortunatos said. The doctor can read more impartially than we are able to verbally communicate. Plus he has it in his notes to reference. Even doctors can not remember or write down everything we say. Fortunatos advice was very thorough for the personal interaction.

Renowned specialist of this type are accustomed to seeing patient that have often been misdiagnosed for years so they do not prejudged as other doctors do. If you are on mestinon, I would time my dosages so that the appointment fell right before the time for the next dose, so the doctor would see you when the mestinon was wearing off.

I will pray for your successful diagnosis and treatment. You are not being cheeky. We are each other support group and here any time.
My thoughts and prayers are with you,
Safe journey,
kathie