Reflex Sympathetic Dystrophy or RSD has been the name of this disease since 1985. Prior to that it was Sydudack Dystrophy.
Now CRPS ? Really ?

The name change excuse is supposedly because people do not have dystrophy.
Well, I don't know anyone with long time RSD that doesn't have the dystrophy part...

So the only "progress" is to change the name again, so now we have to say we have RSD/CRPS.

RSD has the name recognition. Doctors have heard of RSD even if they are not sure what it really is. Changing the name again is a huge step backwards.

Once it spreads down your spinal column it is no longer regional. So complex yes, but regional no. A pain syndrome, but a neurological one, so not just a pain syndrome. So CRPS does not cut it. RSD does.

It's like MS getting changed now to MSDA (mylian sheath disappearing act)

I have voiced my opinion to the so called association. The association was started by parents of 2children that had RSD. They did more for us then this group of people. Now that it is a bigger group with a board, it is not much help at all...

Did you know there was a successful study done in Europe for people under 10 years. 3needle points in the ears, everyday for 3 years. Most were cured of their RSD symptoms. I have not been able to find the study, but know of a person being treated from this study.

Did you know an anesthologist can teach you to do your own nerve block using a liquid lidocaine solution. No needle involved.

Anyway, my 2cents for 28 years of RSD