Thinking about you and hoping your visit tomorrow goes well. Sometimes it takes "fresh eyes" and, of course, an expert neuromuscular specialist to get it right.

9 years is too long to wait for a diagnosis. My wait was about 7 years. I saw probably 7 neurologists, I think, during my limbo period, but I could have lost count The doctors had me convinced it was in my head.

Others here on the forum have given you wonderful advice. I hope that you have a support person going with you to your appointment. It made a tremendous difference to me.

Please let us know how things turn out for you.

Cate