Quote:
Originally Posted by Rrae
Well isn't THIS a fine how-do-you-do!
On one hand, Nanc, it's good that they found this problem. It's pretty significant. On the other tho, the thought of yet another revision isn't what any of us would want to hear. I'm so sorry you are in this quandary. You've been battling this for quite some time.
Man! WHY can't they ever get it right the FIRST time! 
More times than not it seems that these things require at least one revision. Like when my lumbar lead migrated down 6 inches and nobody from the medical staff was hearing me talk about how much pain I was having in my lower back. 6 MONTHS I was in this condition until I absolutely insisted that they take an xray. Because of it, I am having debilitating pain and spasms that are keeping me from being capable of employment.
There has GOT to be a way they can get those leads sutured in more securely. Almost makes me think they do a cr@p job the first time so they know we'll return to keep feeding their money tree.
I'm so sorry, Nanc. I'm angry. Angry that we have to suffer so much. Angry at the system. pffft. 
Maybe, just maybe the revision would set everything straight for you. There's always that hope. Rather than throwing in the towel just yet (but who can blame you!) go for the revision and find out? Plus, the possibility of adding more coverage could be a good thing. If in the end you are still having problems, then at least you'll know you've tried everything possible. I'm thinking this is what I'd probably do, but then again, nobody but you really truly knows the extent of your suffering and who could blame you for being frustrated enuf to just get the hardware taken out.
My heart is with you my friend. I pray that the answer will come for you and that you can be relieved of all this frustration. Believe me, I feel it too. 
Rae
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Hi Rae! I did request the x-rays and am glad I did. I knew something wasn't right, after all I am the one feeling the increased pain! They think that they can just reprogram it to fix it...that wasn't working and now we know why.
I am with you Rae, why can't they get this right the first time...or even the second time??? Now a third? It is crazy and ridiculous! I feel like I should get things fixed because they did help me at one time. But then again, what if I have problems again...should I just get everything removed? Ugh
My husband doesn't want me to allow this dr to do anything to me until he supports my disability claim better. This dr is the one who sent me for a FCE and said he couldn't say I was completely disabled because of the FCE results. The FCE ONLY tested my strengths and weaknesses...how much I could lift, push, pull and reach. How long I could sit, stand and walk (only 3 minutes on the treadmill put my in tears and I had to stop). But the FCE reported I could do sedentary work, so that is what he and the disability insurance company went by. It did not test on my real working environment...working on the computer all day, etc. I was a finance & human resource manager and had a very demanding job. My husband is, of course, angry at this dr! But, I can't change drs right now because I am in the middle of the disability claim appeal. This is all so frustrating. Like having the constant RSD pain throughout my body is not enough, add this other on top of it
Anyway, I do have a lot to think and pray about. Thanks for the great support my friend.
Nanc