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Old 06-10-2013, 05:34 PM
Tashi Tashi is offline
Junior Member
 
Join Date: May 2013
Posts: 64
10 yr Member
Tashi Tashi is offline
Junior Member
 
Join Date: May 2013
Posts: 64
10 yr Member
Default Name change

Changing the name over and over, and calling it progress - there is just something wrong with the whole thing to me.
I got the RSD in 1985. At that time there was Syduack's Dystrophy and Causalgia. Then there was RSd and Causalgia. Then RSD.
Now CRPS.

Other serious diseases don't change their name and call it progress...
We need 1 name for this for name recognition, and stick with it.

The etiology is unknown, like MS our mylian sheath that covers our nerves goes away. But MS is understood by most even if they aren't sure what it is.
So this is my gripe and concern. I used to wear a Medic Alert bracelet, but having to put RSD/CRPS was crazy. I used to spell out RSD.

I just would like actual progress to be made and to leave the name alone.
They have been able to give rats/mice RSD for about 20 years now.
So they never have been able to figure out why they can give it to mice ?
Then they can't figure out how to reverse it ?
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