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Member
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Member
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Mark,
Thanks for the concern. I agree that it is better said that the Ambian and Clonazepam have cleared up the symptoms not the problem. Unfortunately, the problem is more complex for me than just the post concussive syndrome. It looks like I have inherited the same disease that my dad has. The REM sleep disorder is the first symptoms of Parkinson's disease. They call it a precursor for this disease. My MRI shows the same frontal lobe shrinkage as my dad and also shows something that severe chronic migraine headache sufferers have. The specialists at the University of Utah have compared our blood and I have hereditary factors. This specialist said that at this time I do not have enough of the symptoms for a diagnosis of Parkinson's disease but it looks like that is where I am headed. I would not recommend anyone to get on Ambian and/or Clonazepam unless absolutely necessary. With my seizures and this sleep disorder the clonazepam is the only option. It is the only medication that controls this REM sleep behavior problem and as it is brain damaging me every time it happens, I think the clonazepam was a good choice for me. I will have to be on these medications for the rest of my life. For those with just insomnia, I agree with you that there are better alternatives. Wish I had better news to report on my health but it is what it is. I do not need any more brain damage than I already have if there is something that can reduce it. I feel much better being able to get some actual sleep and no seizures. I have been getting out and doing more so this works for me. I hope all of you are coming along good with your recovery. I wish you all the best.
Brain
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Brain patch. .
Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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