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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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I have been tested multiple times for celiac, both by villa biopsy and blood test. All were negative. I have cut most of my carbs out because with the MG they are too hard to chew and swallow. I eat mostly fish, overcooked veggies & potatoes, yogurt and soft fruit.
I was leaning more towards Chrons but the GI doc thinks it is one of my other autoimmune disease. There is so much overlap it is hard to tell.
My original neuro thought I had MS and not MG but my MRI of the brain did not show anything. So he diagnosed me with optic neuritis and expected to see me back. 50% of MS patients are first diagnosed as optic neuritis. The neuromuscular specialist did a SFEMG and said MG. In the last 3 month, my RSD has been breaking through after 15 years under control - those funny nerve sensations and the awful cramping and spazing of the feet. I think the MG aggrevated it.
thanks,
kathie
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