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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Welcome to the group. I am seronegative MG too. I also have a lot of GI problems and Hashmotos hypothyroiditis. I am on mestinon, and currently weaning off pregnisone (down to 25 mg per day). I have my first IVIG next week. I take my mestinon with a snack usually yogurt or fruit an hour before my meal and do not suffer too much GI problems that way.
Most MGers, I think 85% have an abnormal thymus. About 15% have thymoma and the rest have hyperplasia. Thymectomies are showing good results, with 30% of patients going into remission and almost all the rest showing improvement in symptoms. I am newly diagnosed and still hoping for a thymectomy. My next neuro visit is in July and I will bring it up. My MG has gotten a lot worse in the last 2-3 months. I blame it on the warmer weather. Most MGers get worse in the heat. I also think more of my MG symptoms are breaking through since they reduced my pregnisone.
You found a nice helpful group. let us know if you have any more questions,
kathie
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