Great Thread!
My 10yr old daughter had CRPS in her right ankle and foot, and just as it appeared to get better she got multiple problems and pain in her abdomin - bladder kidney and bowel problems and significant right flank pain which has reduced her mobility hugely, more than the foot did. This has ultimitley been diagnosed as CRPS migration.
When we go anywhere I have:
Heat packs, microwavable or the chemical mix type when on the move.
Very soft blankets and pillows to snuggle, plus favourite bear.
A soft sponge ball, that she uses as a distracter when in severe pain, and crushes if its unbearable, as she was causing herself thumb joint injures before by crushing her thumbs when in agony.
A palm tablet computer as distracting games using her fingers do seem to calm pain spasms.
Worry beads - as above.
A ball massager - used in unpainful places as a distraction.
Stories on CD - again takes the focus off the pain.
A range of stupid talking games that are very silly and can make her laugh that seems to help.
The pains will happen, and we find ways of getting mentally away from them before they really set in and reinforce themselves works 9 out of 10 times.