Hi Doc

Well in my own opinion the reason is that John L is away a lot from Boston and the home of the server in the basement of Hasty Pastry and his so called assistants are in California. They have no access to the site at all save for being able to exercise a few changes here and there.

The head honcho is about to make some changes in the general design of the forums such as reducing the topics or some such thing on the individual forums. He is starting with the epilepsy forum as that is his original home forum but you can't see what is happening as because of "security" reasons you have to private mail him and get a password to see what he is trying to do. I assume he has started an example and only the chosen may view it.

Or he is starting his own site. Your imagination can run wild over there but the one fact is evident all over that the members are of no value to the site whatsoever.

John was just recently or in the near future in Calgary Alberta for a meeting, this month for sure is all I am positive of. Whether he takes time to fix the site is debatable.

He will never let anyone but himself fix it regardless of who they are as it is the best reference he has for what he is doing now.

The whole site is a farce and the board he has is useless save for boosting and boasting of what it used to be with no noise as to what it has become.

So in answer to your question it will remain the same as it is for the near future as it survives it's past and then fades into oblivion as it is now headed.

Slow or fast, good or indifferent it is serving it's purpose of being and that is all they want for now. Another non-profit fiasco.


As to what can be done to bring it back is a hard question to answer as when the reporter was asking about all the sites for Neurological diseases and conditions I read what his, John's friend and board member had to say to her and it was as if he was relating what was 5 years ago.

The members also wrote to her and while they had good intentions they waxed on about how good the site was and seemed oblivious to the present condition. So this is what went out in print. And many read it and think how wonderful and indeed once it was so.

I don't think John will ever sell it and while he has seemingly no interest in what is being conducted there by his staff it still serves a purpose.

But the one question for me is where is the reality or is it just Reality now...................It is what you want it to be and to heck with what others see or want.

This site is going to surpass all that Braintalk promised and has failed to deliver. He promised compassion and caring and being there for the long haul and chose instead to leave it all in the hands of one who neither cares nor is the least bit interested in the site or the members in general.

More fools the members be that still are trying to find the good and the value in what once was a beautiful dream.

Wake up people and see this is the reality that you are searching for and try and bring those who need it here.

Sorry if I hurt feelings but the truth is not to be denied but told straight and upfront not banned nor censored by anyone.

for it is truth that will allow us all to go forward.

Thanks for reading

Thelma