|
Member
|
|
Join Date: Jan 2009
Location: Paradise
Posts: 855
|
|
|
Member
Join Date: Jan 2009
Location: Paradise
Posts: 855
|
Quote:
Originally Posted by Tashi
Changing the name over and over, and calling it progress - there is just something wrong with the whole thing to me.
I got the RSD in 1985. At that time there was Syduack's Dystrophy and Causalgia. Then there was RSd and Causalgia. Then RSD.
Now CRPS.
Other serious diseases don't change their name and call it progress...
We need 1 name for this for name recognition, and stick with it.
The etiology is unknown, like MS our mylian sheath that covers our nerves goes away. But MS is understood by most even if they aren't sure what it is.
So this is my gripe and concern. I used to wear a Medic Alert bracelet, but having to put RSD/CRPS was crazy. I used to spell out RSD.
I just would like actual progress to be made and to leave the name alone.
They have been able to give rats/mice RSD for about 20 years now.
So they never have been able to figure out why they can give it to mice ?
Then they can't figure out how to reverse it ?
|
I agree with Tashi. What's the saying? A rose by any other name is still a rose...
RSD is hardly a rose unless you are only considering the thorns!
Another unintended (or perhaps intended) consequence is that anytime a new ICD-9 (soon to be a nightmarish ICD-10) diagnosis code emerges, it usually breaks down into smaller more descriptive components that then are easier targets for insurance denial. I've seen it happen too many times....
|