Sorry - My thought processing is still slow.

The reason I asked about family or friends nearby is because it sounds like, with the amount of pain you're in, they can help by cooking for you, driving you places. The less you have to try to think through the pain, the better. I don't know if you have noticed what we call "brain fog". I was just thinking that maybe you're experiencing that and haven't really realized it and therefore are trying to focus through it and causing the headaches to be worse??

I would recommend asking any friends/family to watch at least Parts 3-5 of "You look Great". It's a series of youtube video's where this man who has had severe PCS describes it in a way that those who have not experienced it can understand. If they understand, they'll be more willing to help you and in general, they'll be more supportive.

The thought of staying inside in a dark room for days on end was a terrible prospect to me, but here are my suggestions. I was an avid reader before this PCS mess, so I like listening to audiobooks. If you can turn the volume low enough, it helps you not go crazy from boredom and provides a distraction from depression and thinking too much about what we can't do. Also, if you do have friends that can come over (one at a time, preferably, so you don't get overwhelmed) they can maybe talk to you in a low voice about mundane things about their lives or whatever. The only other thing I can think of is to play soft music (classical or at least not HARD rock) in the background.

I've found that sitting/laying in bed with my head resting and my eyes closed I can go into a sort of trance where I don't think, but I'm not sleeping. It's just restful!

Last thing, I promise! I'm sorry to hear about your pain. Know that it is going to be ok and try (I know this is a tall order) not to worry. It causes symptoms to be exacerbated!!