To whom do we send our concerns about this? I have no clue. This is for the U.S. I really have no clue for the U.K. or Canada.
A government agency, the A.M.A., The surgeon general?
We all need help here! This Name-code thing affects so many aspects of our lives, work, future medical care, social security, awareness by family & friends etc.
I even have a ribbon on my car from RSDHope.org that says "CRPS/RSD help put out the flame". If I wasn't aware I would probably think it just looks to complicated to be memorable.