Here are articles suggesting that people who have tested negative for AChR antibodies and MuSK antibodies might have low-density lipoprotein receptor-related protein 4 antibodies.
http://www.ncbi.nlm.nih.gov/pubmed/21387385 and
http://www.ncbi.nlm.nih.gov/pubmed/22158716 and
http://archneur.jamanetwork.com/arti...icleid=1150052
One of these articles said that people with Lrp4 antibodies don't respond to Mestinon. I know that people with MuSK antibodies often don't respond well to Mestinon, either. There's new evidence that MuSK MG patients respond to 3,4-Dap, which is also used in CMS.
I don't think there's much chance my neuro would try me on 3,4-Dap. I tested negative for MuSK, too. I'm just thinking that if 3,4-Dap helps people who have MG but don't respond to Mestinon, who knows--maybe it will help me. Any thoughts?
Abby