I think we have seen the sane top guy in the UK based in John Radcliffe Oxford.

A gentle word of warning, I really hope he has changed his ways and treats you with dignity and respect. Unfortunately myself and other MG patients / waiting to be diagnosed patients have found he's very nice to you in person but says a totally different thing in the letters to your gp or local consultant.

He told me he believed I had MG his chief neuro opthalmologist told me without a doubt I did. However when bloods etc came back negative, the promises of ivig etc disappeared and he told all my drs I was making it all up.

Yet here I am 3 years later with nystagmus, bilateral and unilateral ptosis, etc etc ptosis that still resolves with mestinon or an ice pack. I have been referred to an ophthalmologist as this UK specialist poisoned the local neuro dept so they now refuse to treat me. ( this is the first day this week I can actually see).

I sincerely hope that he treats you and you get a diagnosis and are not left like I am by this wonderful UK expert.

Rach