Hi Rach

I am so sorry that you are having such a rough time, there is nothing worse than having to deal with these symptoms on a daily basis without the unnecessary treatment we seem to receive from Doctors -It makes me wonder why some people decide to become Doctors, surely it is because they care and want to help people? Clearly from the treatment most people on this forum have received over the years - this is definitely NOT the case!

Thank you for your word of warning, I am definitely not getting my hopes up as I have not had the greatest experiences with Doctors and Neurologists in the past but I wonder if we have seen the same Dr?? I went to Manchester and this Dr runs a Myasthenia Clinic from there - he is on the MGA website and has previously spent time in the research process with the main lady at Oxford (I'm not sure if I am allowed to mention names!) He said he takes national referrals from Doctors throughout the country who suspect Myasthenia at his Manchester clinic so I assume he's one of the top consultants (but that is only my assumption!)

I was most impressed by his manner and how he said that it didn't matter what the cause of my symptoms were - they need treating and he would see to it. I know I only have his word at this point so things may change but he seemed genuine?? He said that "the dreaded functional diagnosis" (as he put it) was where Dr's are esentially saying "it's in your head" and is irrelevant, he said that if someone came to him with a pain, it wouldn't matter if it was due to a psychological issue or a physical problem that he could actually see - all pain stems from "the head" is a problem and needs treating.

As I said, I only have his word for this at this point but I was relieved to find someone who didn't look at me like I had 2 heads when I described my symptoms as I have in the past (!!) and who seemed to want to help whatever the cause of my symptoms - which is all I could ask for. He was very good to say there is a chance its not but he wanted to check how my nerves are working in any case and seemed to want to find the cause of the problem and not just rule everything out, like the others!!

I really hope your appointment with the Ophthalmologist gives you the answers you need - especially as the specialist Ophthalmologist was so certain you do have it! Do you have a date yet? Do you mind me asking what tests they did at Oxford to rule it out so brutally?? I am so scared for my tests, I dread there being no answer for me but I am hoping he will keep to his word and help me the best he can whatever the results!x