First...so sorry to hear of your struggles. You are not alone...and what your feeling is real.....and its hard when no one gets it. It is a very isolating condition.
Its PCS.....which is a minor Tramatic Brain Injury (mTBI).

This month will be a year for me since my MVA.
I never thought i would still be struggling!!
I HAVE improved though.
At this point...i have the really bad days full of intense symptoms...but...i am now seeing stretches of days where I'm like "wow...i feel kinda normal!"
A few months back....I couldn't see my way out of the all the pain and misery.
When your in the depths of it....it seem like its not even possible...

I was super annoyed by my docs saying give it some time...blah blah
I was also super annoyed by the optimism of the Neuro Chiro I decided to see.

He said he could fix me...yeah right! I have been to chiros before, hated it.
A neuro chiro is completely different...
Anyway..this man proved me wrong! I never thought he could help and while i was seeing him I could finally see the light.
Treatment plan was 2-3 vists a week... for 4-6 weeks.

I plan to go back and start up again..because of how much it helped. Seriously..if anyone can find a Neuro chiro....please try that. They do not push meds...but did suggest things natural..like phenitropic and a couple other things. Overall amazing. ( I had been to everything...PT's, OT's,)


I started out with docs that didn't validate the pain I was in. I totally get that and I felt defeated everytime I walked out the appts. Horrible.

It really does depend on who you go to .

I unfortunately had to change. I am a veteran and go to the VA hospital.....
finally decided to see a civilian neuro (did my research on if they dealt regularly with PCS).
And of course...heard about the neuro chiro from a friend...which was a godsend.

If your able...FIND someone that you know is knowledgeable of what is going on with you.
Some neuro offices wouldnt take me saying that they didnt "deal" with pcs.

Not a place that just knows about it..but a place that stays up to date on all the current findings and treatments.

My doc just went to a huge seminar in New York....JUST about PCS.

They are out there..and you will feel better when you find them...if you have the means to..I know its easier said then done.

One thing that made me cry tears of joy was when I stumbled onto a support group about PCS...you mean there are others like me...same exact symptoms!! People that validate me on a daily basis!? Because once in a while is not enough to keep you going.
I found these forums and they are soooo great...
the regular feed and chat features ect of Facebook are wonderful.
I have made so many personal connections.
We vent, we are silly...we help. (i love that I can HELP now..that i can give back..it gives me a good feeling)

Sounds silly saying that a facebook support group was my saving grace...but it was! Always there for me...and easy to get to and navigate..so didnt take much thought to interact online. All around the world on there...so any time of day someone is there to listen.

YOU WILL feel better....no perhaps not 100%, but it will happen. I am having a bad few days this week...but...i know it will pass...I still get mad about it...and hate how limited I am and what it has taken from me...
Its a grieving process.

I too have tried all the pain meds...migraine meds, it just put me in even more of a fog...unable to participate in my life.

So sorry to drag this on...
and if you made it to the end of this....i hope your head isnt hurting from having to stare at the screen for so long!

Also...here is link to other support group that really made a difference
https://www.facebook.com/groups/113072042059485/