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Old 06-14-2013, 09:40 PM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Quote:
Originally Posted by Kitt View Post
Hi Susanne, Don't you have a son? who was diagnosed with CMT? I can't remember if he had DNA blood testing or what. If so, what type of CMT does he have? At any rate, you both would have the same type of CMT even though you both have different symptoms as symptoms vary greatly even within the same family. I know you know this.
Yes, Kitt, have solid evidence of CMT 2, family history, symptoms, tests. And I just found out that my second son is experiencing numb hands and feet, with clumsiness and toe walking. The eldest one is very affected at 28, about to go on gabapentin.
I was just wondering if they could be co-morbid.

Babymama, I am so sorry to hear about your experience. Diagnosis and tests can take a long time, but to treat you like that is inexcusable.
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"Thanks for this!" says:
Kitt (06-15-2013)