Quote:
Originally Posted by Angelina55
I got my trial on May 23 and they took it out on May 28 because I was in so much pain from where they put the leads in my back. It felt like I had just had major surgery but with no pain meds to get me through. I could barely move and I pretty much cried the whole time I had it except for the last day. It did start to feel better, which makes me wonder why they took it out. My daughter is 6. And it is hard to get family to understand. You would think they would understand the most because they see you the most. Then I have a sister that thinks she has CRPS now and tells me it isn't that bad and I just need to not show my pain like she does. LOL All I could do was laugh at her. If she really had any clue! But she is not a very nice person.  |
I'm sorry for all of the physical and emotional pain you are dealing with now, Angelina.
As disappointed as you might be wit the failed SCS trial, I suspect that you may have dodged a bullet on that one. I've just read too many horror stories here about SCS's (or, worse yet, initial glowing reports that turn into horror stories a year or two later) to feel that they are a good long term solution for us.
It's disappointing when anyone doesn't "get" our pain issues. When the person is a close friend or family member, someone who we thought "got" it or someone who we (thought we could) rely on, the emotional toll is so much worse. As traumatic as it can be, I'd rather know NOW, when I'm only on my sickbed, then be disappointed by someone when I'm on my deathbed, when there is no time left for me to find someone who can support me.
Is your medical team working on finding some other options for helping you get a handle on the pain ?