View Single Post
Old 06-15-2013, 01:10 AM
echoes long ago's Avatar
echoes long ago echoes long ago is online now
Senior Member
 
Join Date: May 2008
Location: new york
Posts: 1,581
15 yr Member
echoes long ago echoes long ago is online now
Senior Member
echoes long ago's Avatar
 
Join Date: May 2008
Location: new york
Posts: 1,581
15 yr Member
Default

Did you do an emg/ncs? Usually when a neurologist says PN is mild moderate or severe they are referring to the amount of nerve damage they are seeing on an emg/ncs. It usually doesnt refer to your level of pain. You can be in very severe pain even with moderate damage showing on an emg. small nerve fibers are not able to be tested by an emg/ncs. you need to get your pain under control to be able to have any type of quality of life. if what you are taking isnt cutting it you are going to have to work with a doctor to get a medicine or combination of medicines that will work. Usually either an anti depressant, such as amitriptylene or cymbalta, or anti seizure medicine, such as neurontin or lyrica or a combination of both are used for pain. not everything is effective for all people. There are a few people here who have had a very rapid onset of their symptoms and spread of PN. Glenntaj is one. there are others. do a search on rapid onset of pn. there is no reason to be ashamed. this isnt something you have chosen to do to yourself. it might also help you to find someone you can talk to about what you are going through, a counselor,social worker, psychologist etc. Being angry and depressed are normal reactions to what is happening to you.
echoes long ago is online now   Reply With QuoteReply With Quote