I think Az-Di made a good point about what if the boot was on the other foot...
When you marry someone, you BOTH make promises to each other. "For better, for worse. In sickness and in health..." If things had been different and he had had an accident and lost a limb, or gone blind, or contracted cancer or any other long-term loss of health, would you have looked after him? Would you have given your love and time freely and gladly because you loved him? Would you protect and defend him from hurtful comments? Would you try to get his loved ones to understand things better to make his life happier? Would you hide any feelings of frustration from him and try to be cheerful? Of course you would.
Conversely, would you blame him for his condition? Would you make him feel guilty for you having to do so much? Would you listen to those who spoke badly of him, and then pass on those remarks to him, knowing how much he would be hurt and his relationships with those people damaged? No.
My husband went through a patch a while back of just being miserable and put-upon, and we ended up talking it all through, and I asked him whether he thought I would stick by him if it had been him instead of me? He got it, and although he has down days, he definitely tries harder to remember that I didn't choose this. I am lucky, he has never told me I am a burden. I was thinking of how you describe things with your husband, and how I would feel if it were me.....my overwhelming response is that the disease is bad enough, I wouldn't need the added emotional trauma of daily life with someone who made me feel so bad.
Only you can decide. But don't be afraid of making a tough decision where any relationship is concerned. If someone in your life is toxic, although choosing to shut them out might be the hardest thing ever, think also of how much better you could feel without all those bad feelings crowding in on you ever day.
Maybe he needs to know that you DO have a choice. That you do not view yourself as a burden desperately shackled to him. He might think you can't cope without him. My bet is that you could. Sometimes they need to know that you value yourself more than they think. The shock of realising he could lose you might trigger a major rethink, it might not, but I think you could feel empowered and better about yourself...
You deal with this every damn day, while bringing up your little daughter and living a life as worthwhile as any. That makes you one hell of a strong individual. If he can't see that, then he is an idiot and doesn't deserve you.
Sorry. Just makes me mad. Didn't mean to be so wordy
Take care of yourselves everyone, and have a better day.
Bram