Originally Posted by Brambledog

I so hope this crappy patch of life is done with you very soon, and you can turn a corner and feel a bit better.

Fins is right about social stuff being a bit if a trial and error situation, as I'm sure you know, but it always sucks when someone else takes your child to do something you wish you could. And I really think you should try to find another doc, his attitude with your SCS trial was off as well, and he is not coming across as he kind of supportive, understanding and knowledgeable doc you need to get through this.

Don't give up. There is a law about every patient having the right to adequate pain relief for their condition - you have to believe it, and challenge your doctor's method of 'caring' for you by cutting your pain meds. It really does stink, and he is not doing his job well. You deserve better.

As far as getting some help and advice, try calling a local medical support network or charity - even if they can't help they will be able to point you in the right direction.

Hang in there. This too will pass

Bram.