Quote:
Originally Posted by Brambledog
I couldn't put it any better than TK, exactly what I was going to say (but better put  )
I'm lucky to have finally found a decent pain doc and physio, but I think very few of us get lucky with the first ones  Sometimes you have to say 'that's just not good enough' and move on. But it's not easy, especially when you are short on energy.
Keep fighting for your right to good treatment, no doctor should just say they can't think of anything else and send you away - its so cruel. I wonder how your doc would cope if he broke his leg badly and was refused meds for the pain on the basis that he would 'get used to the pain...'? CRPS doesn't work like that - your pain needs to be under control for you to be able to keep moving. Any reduction needs to be discussed and to be agreed by you AND the doc. Shows how little he understands the condition, he just thinks you've been on pain meds for while, so he'll try and get you off them. He's not thinking of CRPS as a CHRONIC pain condition needing long-term pain relief. Grrr....
Anyway, really good luck. Hope you find someone soon.
Bram 
|
It is hard to keep fighting and I feel guilty about it because I have only been fighting for about a year. But I am just loosing my fight. I am trying to stay positive for I truly believe that is the best way to fight this thing and to keep my head above water, so to speak. Its just fighting by myself with little to no support and hearing over and over by doctors that I have no hope and being sent away is.....hurtful and hard to handle. I am going to have to call my doctor and talk to him about my pain again. At least he is sticking with me even if he is not really thinking straight right now.