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Old 06-17-2013, 10:22 PM
catie catie is offline
Junior Member
 
Join Date: Feb 2010
Posts: 99
15 yr Member
catie catie is offline
Junior Member
 
Join Date: Feb 2010
Posts: 99
15 yr Member
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I was diagnosed by positive Tensilon test and positive response to Mestinon and prednisone. Antibody negative and EMG negative. Unfortunate that it took 7 years to get there. Even after being seen by a "leading" neuro ophthalmologist and neuromuscular specialist at a large teaching institution. Weakness was "not physiologic" according to the experts. Hmm.... If I sound bitter, it's because I am.

Doing better now and being followed by a wonderful neurologist. Trying to put the past behind me, but often think that I would have had a better response to therapies had I been treated a bit sooner. Double vision has never cleared, except on high doses of prednisone. Retired early due to all this. Learning to pace myself and enjoy the little things in life.
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"Thanks for this!" says:
bny806 (06-17-2013), cait24 (06-18-2013), uncledave (06-17-2013), Unsure81 (06-18-2013)