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Old 06-18-2013, 07:28 AM
wgreen19 wgreen19 is offline
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Join Date: Aug 2012
Location: Ocala, Fl
Posts: 19
10 yr Member
wgreen19 wgreen19 is offline
Junior Member
 
Join Date: Aug 2012
Location: Ocala, Fl
Posts: 19
10 yr Member
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Quote:
Originally Posted by cait24 View Post
I started IVIG for the first time yesterday at home. It went well. It made me extremely exhausted, worse than MG exhausted. By the evening I got my smile back, which I have not been able to do for weeks. And I noticed less muscle pain. But an extreme headache, like my head in a vice came on too. Ibuprofen gave no relieve and I still have it this morning. Any recommendations. IVIG day 2 of 5 should start in 1 hour. How long before you should see effects of IVIG?

thanks
kathie
First, you should be drinking tons of water at least two days prior to IVIG! Then, during, and after. Have they given you any Pre-meds? Then, and finally, pump pressure can also make a huge difference. Ask them if the doctor had written any recommendations down. The best, is to start the pump pressure slow, and then gradually increase it every half hour or so. Many people administering don't like the slower process, as this means it takes longer, but there's alot of importance to starting slow, and ramping up over time.
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"Thanks for this!" says:
cait24 (06-18-2013)