Kathie I can only echo what wgreen mentioned....hydrate and keep hydrating. I had my first 5 day IVIG just 2 weeks ago now and I brought a large sports drink with me each day and as mentioned drank a bunch beforehand. Even with that though, I did have a bad enough headache such that I asked my neurologist for some pain meds to take the edge off, I'm so glad I has those meds on hand.

Like you I found this procedure exhausting, far worse than MG....and at least for me each day I was more tired than the day before. After the 5th day it took another 2 or 3 days to bounce back some. I started noticing some minor positive effects by day 4 but it took a good week to really start feeling good. I have been able to cut my Mestinon usage in half.

Be sure to ask about what troubling side effects to watch out for as they can happen a few days after you have finished. In my case I ended up with hemolysis which is the IVIG attacking my red blood cells, I noticed this caused dark urine and eventually did require a blood transfusion last Friday.

Even with the complication, I'm so glad I went through the process as I really do feel better. It's amazing how bad I have gotten and had not fully realized it until after the IVIG had made me feel so much better.

Best of wishes.....hang in there and afterwards just REST, it will take a few days to bounce back.

Take care

Joe