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Old 06-18-2013, 10:36 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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Matilda- been there (as far as the "oh your just a stressed out new mom conversation/looks).. anyhow.. YOu say you have a skin disease as well - what does that look like - ever thought of dermatomyositis? Did you have a muscle biopsy?? (isn't that the way to definitively diagnose mitochondrial dz? (along with poly and dermatomyosiits).. anyhow.. just a thought (as I am in limbo land too, so I'm always thinking of possibilities to explain it all).
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