Second time around - lost the first one. Disagreement is more food for thought. Perhaps a pill is the same assurgery; it's not like I have this alll thought out. Placebo gets paid like everyone else in the trial of course.

Remember what the cancer survivor we had lunch with, who now advocates for child cancer patients, said about trials? He said there is no problem recruiting child cancer patients. The parents are desperate to save their children. It's the adult trials that go unfilled.

Perhaps this is because there is no one to help an older disabled patient be in a clinical trial.

When they can't fill the trials, they pay the doctors to recruit. That doesn't help the patient get there. Why not help the patient through monetary compensation?

ok not going to belabor it.....finishing with this thought. it's not the patients that withhold data, push for higher doses for more money, take years to reveal results, bribe, I mean employ for consulting, study investigators. It's the paid stakeholders who break their own rules. With the help of patient advocates and paid participants, the ante could be raised to the professional level of expectation all around.

paula