Hello everyone,

Have been diagnosed -at last - with rare disorder erythromelagia (EM) - now widespread throughout body - including scalp, ears. This disorder has totally disabled me -my flares are near on continuous at present. Specialist starting me on IV lidocaine urgently as nothing else in terms of medication ie pregaba, naproxen, venlafaxine etc. has helped . Has anyone had this treatment? Also shout out to Mrs D for any info/advice she could give me please.

Am following Dr Cohen - taking high dose mag, omega, VitD etc... Also aspirin theory 350 day to facilitate vasodilation . Toxin free diet. cold/icepacks etc... Specialist wants me to continue with all of this.

Thank you

God bless