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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Have you been to a neuromuscular specialist at a big teaching hospital or an MDA clinic? I think I would still be spinning my wheels if I went to a local neurologist, most of whom have never seen an MG patient because it is so rare. If you are close to one of the Mayo clinics, Cleveland Clinic or John Hopkins, a lot of MGers have gone there and have had good results. I know it is hard, but do try to persist. MG not properly diagnosed and treated can be very risky.
kathie
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