Hi Kathie - yes, I finally got yo see a neuromuscular specialist at a teaching hospital, I am in the Uk but he takes national referrals for suspected MG so hopefully I got to the right place (I Pray that I have!) I am 10 days into an agonizing 2-3 month wait for my nerve/muscle tests and just hope he was exaggerating the waiting list! Haha!! I'm still not getting any medication, he said that he didn't want to prescribe without confirming MG due to the side effects and risks the medication has - which I understand. I had a chest x-ray with my previous neuro which was clear but I don't know how accurate they are for monitoring the thymus compared to CT and MRI scans??

I am sorry you are still struggling, it's just not fair is it?! You finally get a diagnosis for the meds not to work?! I have read good things about Thymectomy too but operations are scary! I hope you get what you need to feel better very soon - 3 weeks is a long time to wait for your next appointment when you are waiting and needing help! Will be keeping everything crossed for you!