I was just diagnosed with MG about 3 months ago. I started having Ptosis, followed by pretty severe double vision. My very alert ophthalmologist tested me for MG while trying to treat the symptoms and I tested sero positive.
60MG 2 times a dayof Mestinon had little or no affect. I delayed taking prednisone for a couple of days, with my neurologists ok, to test. The Prednisone (80 mg a day) taken in am, however had an almost immediate positive affect. My Ptosis and double vision has all but cleared up. Other symptoms however have occurred and things change almost daily. I am on a schedule to step it down, now down to 40MG a day. Things have been up and down but the vision issues remain under control.
I now realize I have had these symptoms for years and they have gotten steadily worse over time.
I have had Tinnitus for about 20 years, since I first started having hearing issues. It is there 24x7.
My other hearing issues have gotten steadily worse. I test with just a moderate high frequency hearing loss but my comprehension, particularly in my right ear is very bad.
this has been going on for about the same time as the Tinnitus.
I was around big guns during training in the Navy and have been attributing my hearing issues to that.
I have a Hiatal Hernia diagnosed for at least 15 years. It was diagnosed with contrasting xrays and with an endoscopy so I know its real but it is the failure of a muscle to close shutting off the stomach opening that causes it.
I have always tired easily and recovered quickly with rest but that to has gotten worse for over the last 15 or 20 years.
I have 'memory fog' that has also become worse over the same period. I have had a very technical career path. I read computer dumps on main frame computers. I am a CICS product specialist. I still have exceptional skills for processes I learned early in my career but find it extremely difficult to learn new products and skills. I am fortunate that in a business where products become obsolete in 3 or 4 years, the basic process of problem determination for CICS issues remained consistent enough to keep me employed for over 20 years until I reached retirement age.
My question now is could I have had MG for all of this time but did not realize it until it affected the muscle control of my eyes.
If that is so it seems like the term 'voluntary muscles' is a little more complex then it seems.
Some of the muscles I seem to have trouble with do not seem to be all that voluntary.