I/Stacey? reading through your pain, saddened me. I was diagnosed six months ago, and now in Perth awaiting Neaurologist HELP??? from royal Perth hospital.
have had no botox yet, but soon to begin.Ive taked the clonazepans then diazapan,with I think a little help keeping me dozed up a bit, Off all now awaiting a fresh start with this new Dr of hope and faith he can help... At night to get to sleep I take two mersyndol with two Tamarze, after an hour and some they put me down for some sleep.
IF my new neaurologist has any new answeres for "relief" of this harsh disease I will pass it on. The occipital nerve pain, it appears you have tried all. My thoughts go to you, as one who lives in this horrid disability. Carol.